Why I’m Running

Aaron Blank / March 3, 2015

Children run. The innocence, energy, and boundless enthusiasm of childhood is embodied in the simple act of pushing off and pumping those little legs as fast as they can. Some fast, some not so fa11001917_10153241216476019_6777791798801577751_nst, but all children run.

My two and a half year-old son Ermias will never be among them. He suffers from epidermolysis bullosa, a rare affliction that renders his skin and connective tissue unbearably fragile. Even the gentlest touch leaves painful blisters. For him, every day is a gauntlet in which every surface is an unavoidable injury. Needless to say, running is out of the question.

There is only so much my wife and I can do for him. At the end of each day we nurse his many blisters, which must be lanced, drained, medicated and dressed. We try to make his life as free from pain as we can, b10389487_10153246857706019_2136222968211514843_nut that’s difficult when the entire world is a weapon, aimed straight at him.

I want to do more. I want this terrible disease to go away, both for Ermias and for the other children who suffer as he does. The only way that can happen is with continued research and study, which must be funded.

I’ve never run more than a few miles at a time in my life (when I ran!), but there is no awful disease stopping me. I have no excuse. I’m going to run the Rock ‘N’ Roll Half Marathon in June to raise money and awareness for the EB Research Partnership. Because I can and Ermias can’t. Because my love as a father can only do so much. Because we need help to beat this thing. I’m joining Team EBRP (EB Research Partnership) to fight the fight!

Learn more by checking out my Crowdrise page here. You can also follow along on twitter by searching #EBRun4Ermias.

Thank you for your support!

Comments (2)

    Bringing “Life” Back into the Workplace – The Fearey Group Dec 22, 2015, 3:23 PM

    […] Bullosa (EB) that makes his skin and other connective tissues unimaginably fragile. Last spring I ran a half-marathon to raise awareness and money for EB research. My Crowdrise effort raised more than $9,000 and I […]

    A Focus on Relationships in 2016 – The Fearey Group Jan 4, 2016, 2:19 PM

    […] was a big year for me and The Fearey Group. We went through some changes, challenged ourselves, thought hard about priorities and found new ways to put life into our work and work into our […]

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Aaron Blank

CEO & President, Partner

Aaron has been engaged in the conversation since the late 1990s, where he discovered his love of media while working at local radio stations. After five years as a radio reporter, anchor, producer and promoter in New York and Connecticut, he and his wife, Lacey, ventured west to begin his career in PR. Soon he caught the attention of industry legend Pat Fearey and the rest is history. Two decades later, as CEO and owner of Fearey, Aaron leads with tireless enthusiasm and contagious drive. In 2014, he became the next generation owner of the firm. He takes his breakfast at 4:30 AM and never eats lunch alone. You can find him working to connect the next business with tomorrow’s leader.

Personal philosophy: do something amazing every day and be fearless!